Learning Disabilities: LeDer
The Learning Disabilities Mortality Review (LeDer) programme is a national initiative established to support local areas to review the deaths of all people with Learning Disabilities aged 4 years and older. Their aim is to identify learning from those deaths and take that learning forward into service improvement initiatives to help reduce premature mortality and health inequalities.
Reporting the death of someone with a Learning Disability to LeDer can be done by anyone (e.g. family member, GP, careworker, other) by telephone or email (see below). This starts the review process to ultimately support quality improvement. LeDer is not an investigation nor is it aimed at holding any individual or organisation to account.
The new LeDeR website and notification site was launched on 25 May 2021. This replaced the previous University of Bristol web pages and notification site, which has been decommissioned. The way in which a death is notified remains the same. The move follows the introduction of a new policy for LeDeR, also in easy read. From 1 June 2021, there will also be a new process for reviewers to follow, new training and a new web platform for the LeDeR workforce.
It is anticipated that an announcement about the new academic partner will be made in the coming weeks.
It has approval from the Secretary of State under section 251 of the NHS Act 2006 to process patient identifiable information without the patient’s consent. GPs may be approached by a reviewer to find out information about a case.
LMC View: This is not a requirement under the GMS contract. However the LMC recognise the importance of supporting this vulnerable population and the opportunity to learn from reviews. If you feel able to participate then you are able to do so under the section 251. However we do not believe there to be a statutory requirement on General Practice to do this. The LMC supports Significant Event Analysis as an important learning process and participation in LeDer reviews can contribute to this with added value in terms of GP appraisal and CQC reviews.