NHS England made the decision to close the care.data Programme in 2016. The government and health care system remain committed to the benefits of information sharing. This work is being taken forward by the National Information Board.
Patients should call the dedicated patient information line on 0300 456 3531 the line is open Monday to Friday, 8am to 8pm and on Saturdays from 9am to 3pm. A text phone service is also available on 0208 7428620
GP practices can contact the HSCIC Contact Centre, who are acting as a helpline for GPs, by calling 0845 300 6016 or email email@example.com quoting ‘care.data GP’ in the subject line
General Care.Data enquiries email us at: firstname.lastname@example.org
NHS England staff only call Tim Carter on 07824 124 402 or email@example.com
Media calls: 0113 825 0958 or firstname.lastname@example.org
This guidance includes information on:
- What do I need to do to meet fair processing obligations?
- Recording objections
- What awareness activities are taking palce at national level?
- GPES Training
- How does care.data relate to the Summary Care Record.
When care.data Programme is established, GP practices nationwide will be required to supply patients’ personal and confidential medical information, on a regular and continuous basis, to the Health and Social Care Information Centre (HSCIC). This information will be extracted from the practice in a form that can identify you i.e. it will not be anonymised, and will include your NHS number, date of birth, postcode, gender and ethnicity. You can download more information about important changes to your medical information, including about how to 'opt-out' of this programme and there is a useful diagram detailing the information flows here.
Further information about care.data is available from NHS Choices